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Ординатура / Хирургия / Библиотека им академика М.И. Перельмана / Книга_4510_Библиотеки_им_академика_М_И_Перельмана.pdf
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P. R .P. P. Zag a ri et al .
conventional symbols, which is used in different modalities for thought and com­munication, and which has integrated components: cognitive (attention, memory, perception, praxis), linguistic (phonological, morphological, syntactic, semantic), pragmatic (use of language in communication), and phonetic (in its acoustic and articulatory components) [38]. According to this conception, for the production of oral language (speech) to occur, cortical activation is necessary, besides the action of various combinations of contraction of the phonoarticulatory muscles to produce certain phonemes (speech sounds).
This theoretical assumption of language dialogues with the medical model found in the different health services, which has its recognized importance when it values the observable clinical ndings and objectives, the complaint, the diagnosis, the pathology, the application of techniques, and the specic treatment, regardless of what the subject brings. To think of alternative communication in this conception is to consider a work marked by skill training, improvement of the use of the resource to guarantee greater communicative effectiveness, and development of teaching– learning strategies. This may be a path, but not the only one, as there are other aspects of the work that are inscribed in the dimensions of language functioning, such as each patient’s mode of meaning (which depends on their life history), strate­gies to deal with situations of communication, discursive construction, and produc­tion of meaning (which is not subject to training, since it happens in the act and changes with each enunciation process) [39], as well as psychosocial and environ­mental factors, motivation, and social roles that determine the use of language and are fundamental in human interaction [40]. The relational model articulates these conceptions, so it proposes that the speech–language pathologist clarify the most objective questions of an organic nature, and at the same time contextualize these ndings with knowledge about the interactional history of the patient [41]. From this point of view, it is not enough to collect the information by itself or to apply a certain therapeutic technique; it is also necessary to listen to the data given by the professional, whether verbal or nonverbal, and the articulation that can be estab­lished between them, aiming at not only the disease but also the subject who mani­fests the symptoms reported. In this model, listening to all of those involved in the process is fundamental, be they family members, caregiver(s), and/or the interdisci­plinary team itself.
Partial loss or absence of oral communication of tracheostomized patients can directly impact the family, since these individuals often present with feelings of fear and insecurity and are unable to explicitly communicate their needs, doubts, and desires. Many relatives report that even when they are exhausted, they refuse to sleep because they think that if the patient calls, no one will be around to help, or because they think that the patient may feel abandoned.
Another barrier faced by the family is not knowing how to deal with the frustra­tion of not understanding what the patient is talking about and not knowing how to use strategies that facilitate communication, which triggers wear for all of the peo­ple involved and can negatively impact the recovery of the individual [33].
In addition to the impact on the patient, the family, and the team, the patient who is unable to communicate also generates a cost increase to the paying source, since
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in this condition, if the patient is hospitalized, they may be hospitalized for a longer time and prone to “medical errors,” often undergoing unnecessary use of sedation and medication for pain, in addition to having low adherence to treatment, due to the inability to get involved with the care team (make comments, ask questions, etc.).
Some studies show that hospitalized patients with access to communication receive less sedation, present clinical improvement, and have better satisfaction with the health plan, a shorter hospitalization time, more control and participation in the process of self-care, and better management of pain [43], noting that partial or total deprivation of communication may impact all patients, but the selection and implementation of AAC is not the same for everyone.
Among other measures adopted to improve communication, one study has shown that structured family care, in structured sessions with the participation of the inter­disciplinary team, improved some aspects of client satisfaction, particularly in situ­ations of decision making [44].
Due to the great demand of patients in this condition, it is necessary to increase the number of professionals working in the AAC area, to train and assist profession­als who will offer AAC services to tracheostomized patients in situations of vulner­able communication, and to develop projects for the institution to include in its budget the acquisition of tools, in addition to the use of AAC strategies, which should be available immediately for assessment and intervention.
Proposals for Use of Augmentative and Alternative Communication for Tracheostomized Patients: Many individuals who use a tracheostomy tube with par-
tial or total deprivation of oral communication can improve their social participation by increasing the frequency of their interactions and making decisions about their own lives when using some type of AAC resource.
In Brazil, work with AAC in tracheostomized patients is still little publicized and recognized, so it is incumbent upon each professional to identify and understand access barriers (physical, motor, cognitive, cultural, visual, and auditory) that make the participation of the patient in the recovery process unfeasible, but also to adopt intervention measures in the face of barriers to opportunities in terms of institutional policies, multidisciplinary practices, vocational training, and the use of resources in the environment.
The primary role of the speech–language pathologist is to provide the multidis­ciplinary team and family members with information, clarication, support, and specic indications on how best to communicate with the patient, as well as identi­fying and elaborating action plans against barriers to opportunities and access to the use of AAC.Thus, the professional must guarantee the right of communication of the important part of the population that needs these resources in the most complete way possible, as established by the American Speech–Language–Hearing Association (ASHA) [45], and the central focal point should be people, not resources [46, 47].
For selection of the AAC resource, it is important to consider several factors: the clinical prole; underlying disease; alert conditions; motor, perceptual and sensory conditions; presence of tracheostomy and mechanical ventilation (invasive and non­invasive); cognitive and language impairment; fatigue; prior user experience; support
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of communication partners; participation of a facilitator; adverse reactions to medi­cations; educational level of patients; and environmental interference. Interventions in the AAC area vary according to the case analysis from an interdisciplinary point of view, and according to the clinical conditions presented by each patient, so that they meet the shared needs and expectations through dialogue with the candidate.
Regarding the evaluation procedures, the use of open or semistructured inter­views, evaluations in functional and/or standardized situations, and protocols that investigate the linguistic–cognitive, sensory, motor skills, and communicative needs of the patient with a disorder of communication is recommended. The objectives of the evaluation are to adopt measures to eliminate communication barriers and facili­tate the participation of users in dialogue situations with different speakers in differ­ent contexts, thus allowing them an active role in the recovery process, autonomy, and better professional/patient interaction, social integration, and quality of life. Permanent dialogue with the family, caregivers, and staff is fundamental and is part of the routine of the speech–language pathologist; as with communication, there can be various doubts and expectations that overlap in relation to the patient’s speech recovery, e.g., will AAC solve the problem of patient communication; can AAC hinder the process of adaptation and training of voice and/or speech with other devices; will AAC prevent speech recurrence if the patient is decannulated; and will AAC minimize communication difculties or will it leverage improvement of other skills? These questions are frequently asked at the outset by the multidisciplinary team and family members, and they deserve attention on the part of the speech–lan­guage pathologist, since all of those involved in this process must visualize that the resources are legitimate for the interactive and communicative processes; if this recognition does not exist, the procedures will not be effective, regardless of their importance and scope.
The aim of the intervention is to promote the development of communication so that people with complex communication needs can develop, reconstruct, or main­tain communicative competence in their relationships, exchange information, and participate in social activities [46, 47].
In health services in general, there are simple tools and strategies available to improve patient communication, but these are generally not used (e.g., paper, pen, white board, etc.). The devices can be of low technology (e.g., use of indicative, representative, and symbolic gestures and orofacial expressions), medium technol­ogy (e.g., drawn and written graphic emissions,concrete objects, or boards with an alphabet, words, phrases, and pictograms), or high technology (e.g., vocalizers and computerized systems). The success and effectiveness of these interventions lie in the combination of nontechnological resources (linguistic, paralinguistic, and extra­linguistic) associated with low-technology and/or high-technology resources, since the communicative situations vary according to the speaker, the extension and inten­tion of the message, the environment, and the context. The indications for high­technology features for tracheostomized patients include different symbols, mode and access options (speed, paused/interruptions, and ltering), voice output options, message formulation, word prediction, storage, retrieval, and interconnectivity.
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In this sense, we must consider the importance of multidisciplinary work in assistive technology, including (in addition to the speech–language pathologist) the occupational therapist and/or physiotherapist, to favor postural adequacy of the patient by providing accessibility of AAC devices and adaptation of equip­ment, the environment, and activities [36]. This considers that the indication for an appropriate AAC resource involves not only linguistic–cognitive criteria; articulatory competence (orofacial movement); and sensory, motor, and acces­sibility condition; but also a “task force” of several participants. This will ensure that:
• The communication of the individual is monitored.
• Referral for evaluation with the AAC resource is done in a timely manner.
• The indication for an AAC resource is accepted by the patient.
• Technology is acquired (purchased).
• Instructions for use are complete.
• Adaptations of the resource are made according to communication needs.
Considering the criteria of orofacial mobility (articulation) and the motor and accessibility prole, it is possible to group some patient candidates for the use of some devices and strategies in AAC:
Group 1: Preserved articulatory (orofacial) and manual function. Purpose: To
monitor communication and provide information on the possibilities of expand-
ing the communicative function.
Group 2: Committed articulatory (orofacial) function, manual function, and
global mobility preserved. Purpose: Alphabetical supplementation, writing (por-
table), direct selection of low- and high-technology resources and calling devices
(Figs.10, 11, 12, 13, 14, 15, 16 and 17).
Group 3: Impaired articulatory (orofacial) function, preserved manual function,
and mobility of other compromised structures. Purpose: Similar to that of
Group2, except that the AAC features can be assembled and transported in a
wheelchair or walker. Access to AAC and other assistive technology needs to be
integrated.
Group 4: Articulatory (orofacial) function and manual function compromised;
mobility present of some other structure of the body. Purpose: Alternative access
(pointer, eye scan, or trigger); not necessarily portable. Access to AAC and other
assistive technology needs to be integrated (Figs.18, 19, 20 and 21).
Group 5: All motor functions compromised. Purpose: Indirect access (similar to
that of Group 5). Access to AAC and other assistive technology needs to be inte-
grated (Figs.22, 23, 24, 25, 26, 27 and 28).
Patients who learn to use communication tools, such as boards with pictograms or words and simple communication devices, report improvement in satisfaction and comfort in comparison with care that lacks this support [4850]
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DON´T EAT
EAT SOUP JUICE
TRACHEOSTOMY FEEDING TUBE STOMACH
THICKENED
LIQUID
Fig. 10 Boards with pictograms or photographs aimed at self-care, basic needs, body/comfort, and personal interests
I PAIN FAMILY HUNGER
HEAD HEAT NURSE THIRST
BODY COLD DOCTOR WC
ABC...
BED UNWELL PHYSIOTHERAPIST GET THE ALPHABET
Fig. 11 Boards with pictograms or photographs aimed at self-care, basic needs, body/comfort, and personal interests
Fig. 12 SonoFlex for iPad and Android tablets (CIVIAM)
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421
History
1:06 PM
i
it
Pronouns
People
Quick
Phrases
be
can
Verbs
Time
do
have
Discribe
Places
i want to
like
want
Things
The
And
A
Fig. 13 SonoFlex for iPad and Android tablets (CIVIAM)
not
to
Body and Clot...
QuestionsShort Words
Keyboard Select Context
ABC
how
what
Food and
Eating
Write Phrases
About me
Beach
Circle time
Art
Fig. 14 Writing boards
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Fig. 15 Writing boards
P. R .P. P. Zag a ri et al .
Fig. 16 Word predictor: Proloquo 4 Text (source: http://www.assistiveware.com/)
For AAC to succeed, sophisticated tools are not required. In addition to the nec­essary training for professionals and family members who accompany the patient in the hospital, at home, or in other places and contexts, the most important thing is to favor the patient with an “easier” form of communication, considering a simple resource for independent use by the user. More elaborate technology or techniques are indicated only for patients with learning ease.
Rehabilitation After Tracheostomy
Fig. 17 Simple communicator: Go Talk (source: http://clik.com.br) [39]. The simple communicator can be used to call for attention, for social interactions, for participation in activities, and to establish cause and effect
Fig. 18 Simple communicator: Go Talk (source: http://clik.com.br) [39]. The simple communicator can be used to call for attention, for social interactions, for participation in activities, and to establish cause and effect
423
Mom, I want
juice, okay?
Some situations that may limit work with AAC are [42]:
• Patients in the acute phase of an illness who require intensive multidisciplinary
assistance for care
• High frequency of examinations, procedures, medical evaluations, and family visits
• Clinical instability of the patient
• Oscillation of the level of consciousness
• Short time frame for functional use
424
Fig. 19 Custom trigger integrated into a computerized alternative communication system. By an alphabetical auditory scan and cervical movement, the patient selects graphical images for writing on the computer
P. R .P. P. Zag a ri et al .
Fig. 20 Custom trigger integrated into a computerized alternative communication system. By an alphabetical auditory scan and cervical movement, the patient selects graphical images for writing on the computer
Rehabilitation After Tracheostomy
Fig. 21 Emergency call system adapted to a wheelchair, with a bell activated by a discreet cervical movement. It can be used as a trigger to be adapted to the computer
425
Fig. 22 Emergency call system adapted to a wheelchair, with a bell activated by a discreet cervical movement. It can be used as a trigger to be adapted to the computer