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Significant websites xxix
http://www.ethics-network.org.uk
UK Clinical Ethics Network
http://www.gmc-uk.org/
General Medical Council
https://www.bioethics.nih.gov/home/index.shtml
National Institutes of Health website – bioethics pages
www.each.eu
European Association for Communication in Healthcare
https://www.wma.net/policy/
World Medical Association policy
2 Infectious diseases
http://www.cdc.gov
US Department of Health and Human Services, Centers for Disease Control and Prevention (CDC). The CDC has a major role in public health efforts to prevent and control infectious and chronic diseases, injuries, workplace hazards, disabilities and environmental health threats
https://www.gov.uk/government/groups/expert-advisory-group-on­aids#announcements-and-publications
Department of Health Expert Advisory Group on AIDS: information about post-exposure prophylaxis, guidelines for pre-test discussion on HIV testing and risks of transmission
https://www.cdc.gov/hiv/clinicians/treatment/treatment-clinicians.html
Centers for Disease Control and Prevention: HIV/AIDS treatment/information service
http://ecdc.europa.eu/en/Pages/home.aspx
European Centre for Disease Control
http://www.nfid.org
National Foundation for Infectious Disease, USA
http://www.hpa.org.uk
Health Protection Agency website. Provides up-to-date information for medical practitioners on some infectious diseases and their prevention, particularly those that are new or where an epidemic is expected
http://www.phls.co.uk/
UK Public Health Laboratory Service: UK regional information on infections
http://www.who.int/en
The World Health Organization is the United Nations specialized agency for health. The website provides information and fact sheets on many infectious diseases, and much more
xxx Significant websites
3 Gastroenterology and nutrition
http://www.bsg.org.uk
British Society of Gastroenterology. Regularly updated clinical practice guidelines for many common conditions
http://www.gastro.org/practice/medical-position-statements
American Gastroenterology Association medical position statements provide preferred approaches to specific medical problems or issues
Information for patients and relatives
http://www.coeliac.co.uk – Coeliac UK
http://www.corecharity.org.uk – Core
http://digestive.niddk.nih.gov/ddiseases/a-z.asp – National Digestive
Diseases information clearing house
http://www.gastro.org/patient-care/patientinfo-center – American Gastro-
enterology Association Patient Center
www.crohnsandcolitis.org.uk – National Association for Crohn’s and Colitis
4 Liver, biliary tract and pancreatic disease
http://www.aasld.org/practiceguidelines/Pages/default.aspx
American Association for the Study of Liver Disease practice guidelines
http://www.easl.eu
European Association for the Study of the Liver
http://www.basl.org.uk/
British Association for the Study of the Liver
Information for patients and relatives
http://www.britishlivertrust.org.uk – British Liver Trust
http://www.liverfoundation.org – American Liver Foundation
http://pancreasfoundation.org – The National Pancreas Foundation
5 Haematological disease
http://www.bcshguidelines.com
The British Committee for Standards in Haematology. Guidelines for medical practitioners on diagnosis and treatment of haematological diseases
http://www.hematology.org
American Society of Haematology. Clinical guidelines, self-assessment programme, teaching cases and video library
Information for patients and relatives
http://www.blood.co.uk – UK National Blood Service
Significant websites xxxi
http://www.haemophilia.org.uk – The Haemophilia Society for patients
affected by bleeding disorders
http://www.leukaemia.org.au – Leukaemia Foundation
www.sicklecellsociety.org – Sickle Cell Society
6 Malignant disease
http://www.cancer.gov
US National Cancer Institute provides cancer statistics, patient information and clinical trials
http://www.endoflifecare-intelligence.org.uk/home
NHS National End of Life Care Programme
Information for patients and relatives
http://www.macmillan.org.uk – Macmillan Cancer Support
http://info.cancerresearchuk.org – Cancer Research UK
7 Rheumatology
http://www.rheumatology.org.uk
The British Society for Rheumatology. Clinical guidelines for medical practitioners and information for patients and relatives
http://www.arthritisresearchuk.org
Arthritis Research UK. Publications on musculoskeletal conditions and patient information
http://www.nos.org.uk
National Osteoporosis Society. Guidance on investigation and management of osteoporosis
http://www.rheumatology.org/Practice-Quality/Clinical-Support/Clinical­Practice-Guidelines
American College of Rheumatology clinical practice guidelines
Information for patients and relatives
http://www.nos.org.uk – National Osteoporosis Society
http://www.nras.org.uk – National Rheumatoid Arthritis Society
8/9 Water, electrolytes and acid–base balance/Renal disease
http://www.arupconsult.com/Topics/ElectrolyteAbnormalities.html
ARUP Consult; the physician’s guide to life-threatening electrolyte abnormalities
xxxii Significant websites
http://www.britishrenal.org
British Renal Society, guidance on clinical management
http://www.kidney.org/professionals/kdoqi/guidelines.cfm
National Kidney Foundation clinical practice guidelines
http://www.renal.org
The Renal Association guidelines
https://www.nice.org.uk/guidance/cg174/chapter/1-recommendations
NICE guideline (CG174): Intravenous fluid therapy in adults in hospital (published December 2013)
Information for patients and relatives
http://www.kidney.org – UK National Kidney Federation
10 Cardiovascular disease
http://www.erc.edu
European Resuscitation Council (ERC). Latest guidelines on resuscitation, as well as a full overview of the ERC educational tools such as manuals, posters and slides
http://www.resus.org.uk
Resuscitation Council (UK). Resuscitation guidelines
http://www.escardio.org
European Society of Cardiology clinical practice guidelines
http://www.cardiosource.org
American College of Cardiology
http://www.ecglibrary.com
ECG tracings library to help improve ECG skills
Information for patients and relatives
http://www.bhf.org.uk – British Heart Foundation
http://www.americanheart.org – American Heart Association
11 Respiratory disease
http://www.brit-thoracic.org.uk
British Thoracic Society. Clinical practice guidelines, clinical information and information for patients and relatives
http://www.goldcopd.org
The WHO Global Initiative for Chronic Obstructive Lung Disease (GOLD). Clinical guidelines on diagnosis, treatment and prevention of COPD. Patient information
http://www.thoracic.org
American Thoracic Society, clinical practice guidelines and patient information
Significant websites xxxiii
Information for patients and relatives
http://www.asthma.org.uk – Asthma UK
http://www.quitsmoking.com – The Quit Smoking Company
http://www.quitsmokinguk.com – NHS Quit Smoking Service
12 Critical care medicine
http://www.esicm.org
European Society for Intensive Care guidelines and recommendations for medical practitioners
http://www.ics.ac.uk
UK Intensive Care Society standards and guidelines for medical practitioners
http://www.survivingsepsis.org
Surviving Sepsis Campaign clinical guidelines
13 Drug therapy, poisoning and alcohol misuse
http://www.mhra.gov.uk
Medicines and Healthcare Products Regulatory Agency includes
http://yellowcard.mhra.gov.uk to report suspected side effects to any
medication
http://www.toxbase.org
Toxbase. Database of UK National Poisons Information Service
http://www.toxnet.nlm.nih.gov
US National Library of Medicine Toxicology and Environmental Health Information Program. Toxicology, environmental health, chemical databases and other information resources
http://www.who.int/topics/poisons/en/
International Programme on Chemical Safety contact details of all poisons – centres world-wide.
https://www.gov.uk/government/collections/carbon-monoxide-co
Department of Health. Detailed information on carbon monoxide poisoning
Information for patients and relatives
www.patient.co.uk/dils.asp – Patient UK. Information leaflets on specific
medicines and drugs
http://www.alcoholscreening.org helps people assess their drinking
patterns
http://www.drinksafely.info – useful information about harmful effects of
alcohol and guidelines for safe drinking
xxxiv Significant websites
14 Endocrine disease
http://endocrine.niddk.nih.gov
US National Endocrine and Metabolic Diseases Information Service
http://www.endocrinology.org
Society for Endocrinology. Clinical updates, clinical cases and publications related to endocrinology
http://www.british-thyroid-association.org
British Thyroid Association
Information for patients and relatives
http://www.endocrineweb.com – website for diabetes, osteoporosis,
thyroid, parathyroid and other endocrine disorders
http://www.btf-thyroid.org – The British Thyroid Foundation
http://tedct.org.uk – Thyroid Eye Disease Charitable Trust
http://www.pituitary.org.uk – The Pituitary Foundation (UK). Information
and support for those living with pituitary disorders
15 Diabetes mellitus and other disorders of metabolism
http://www.idf.org
International Diabetes Federation
Information for patients, relatives and healthcare professionals
http://www.diabetes.org.uk – Diabetes UK
http://www.diabetes.org – American Diabetes Association
http://www.jdrf.org.uk – Juvenile Diabetes Research Foundation (UK)
16 The special senses
http://www.nei.nih.gov
National Eye Institute with a professional section of statistics and pathology collection and information for relatives and carers
http://www.eyeatlas.com/contents.htm
Online atlas of ophthalmology
http://www.entuk.org
British Association of Otorhinolaryngologists guidelines and position papers as well as information for patients and relatives
Information for patients and relatives
https://www.actiononhearingloss.org.uk/ – Deafness Research UK
Significant websites xxxv
17 Neurology
http://www.theabn.org
Documents relating to evidence-based neurology
Information for patients and relatives
http://www.epilepsy.org.uk – Epilepsy Action
http://www.gbs.org.uk – Guillain–Barré Syndrome Support Group
http://www.mssociety.org.uk – UK Multiple Sclerosis Society
http://www.parkinsons.org.uk – Parkinson’s Disease Society
http://www.stroke.org.uk – The Stroke Association (UK)
18 Dermatology
http://www.dermatlas.net/
A collection of 11 750 images in dermatology and skin disease
http://www.bad.org.uk
British Association of Dermatologists clinical guidelines and other professional information
Information for patients and relatives
http://www.eczema.org – UK National Eczema Society
http://www.paalliance.org – Psoriatic Arthropathy Alliance (psoriasis)
Therapeutics
http://bnf.orgBritish National Formulary. Authoritative and practical
information on the selection and clinical use of drugs
http://www.dtb.org.uk/idtbDrug and Therapeutics Bulletin. Independent
reviews of medical treatment.
Registration is necessary for these websites.
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Ethics and
1
Ethical and legal issues are integrally involved with patient care. A doctor with clinical responsibility for a patient has three corresponding duties of care:
Protect life and health. Clinicians should practise medicine to a high
standard and not cause unnecessary suffering or harm. Treatment should only be given when it is thought to be beneficial to that patient. Competent patients have the right to refuse treatment, including life­sustaining treatment. Such decisions should be informed by a clear explanation about the consequences of refusal.
Respect the right to autonomy. Clinicians must protect the patient’s right
to respect for autonomy and self-determination, and support patients in reasoning, planning and making choices about their future. Wherever possible, patients should remain responsible for themselves. Informed consent gives meaning to autonomy and, alongside the duty to respect patient confidentiality and human dignity, represents a fundamental feature of good medical practice.
Protect life and health, and respect autonomy with fairness and justice.
All patients have the right to be treated equally and without prejudice or favouritism, regardless of race, fitness, gender, sexuality or social class.
Many people find that frameworks and tools that focus on the application of ethical theory to clinical problems are useful. Perhaps the best known is the ‘Four Principles’ approach:
Autonomy: allowing ‘self-rule’, i.e. letting patients make their own
choices and decide what happens to them.
Beneficence: doing good, i.e. acting in a patient’s best interests.
Non-maleficence: avoiding harm.
Justice: treating people equitably and fairly.
Various regulatory bodies, common law and the Human Rights Act 1998 regulate medical practice and ensure that doctors take their duties of care seriously. The ethical standards expected of healthcare professionals by their regulatory bodies (for example in the UK, the General Medical Council (GMC), the Royal College of Physicians and British Medical Association) may at times be higher than the minimum required by law.
communication

LEGALLY VALID CONSENT

It is a general legal and ethical principle that valid consent must be obtained before starting any treatment or physical investigation, or providing personal care for a patient. This principle gives meaning to respect for autonomy and
2 Ethics and communication
reflects the right of patients to determine what happens to their own bodies. For instance, common law has established that touching a patient without valid consent may constitute the offence of battery. Furthermore, failure to obtain valid consent may be a factor in a claim of negligence against the health professional involved, particularly if the patient suffers harm as a result of treatment.
In order for consent to be valid it must be:
• Given by a patient who has the capacity to make decisions about their care
• Voluntarily given, i.e. free from coercion
• Sufficiently informed
• Continuing, i.e. patients can change their mind at any time.

Capacity

Patients must have capacity in order to make choices about their health or treatment. In the UK, patients over the age of 16 years are presumed to have capacity to consent to treatment unless it can be shown otherwise, and judgements about capacity must not be assumed by specific diagnoses or impairments. Capacity to consent to treatment requires that the patient must be able to comprehend and retain information given about the proposed treatment, use this information in the decision-making process and be able to communicate their decision. Capacity is not an ‘all-or-nothing’ concept, meaning that patients may have the capacity for some choices but not others. Additionally, capacity can fluctuate. Hence, assessments of capacity are decision specific and should be reviewed regularly. Doctors should be aware of factors which can enhance or diminish a patient’s capacity. A competent patient’s decision about their care or treatment must be respected regardless of whether doctors agree with it or not.

Information disclosure

The amount of information doctors provide to each patient will vary according to factors such as the nature and severity of the condition, the complexity of the treatment, the risks associated with the treatment or procedure and the patient’s own wishes.
In the consent process, enough information must be provided to inform the patient’s decisions. Any discussion with the patient should be supplemented by written information where relevant. The amount of information that doctors share with patients will vary depending upon what the individual patient will want or need to know. For a patient who does not speak the native language this must be done with the aid of a health advocate. The type of information provided should include:
• Details and uncertainties of the diagnosis
• The purpose of the investigation or treatment
• Options for treatment including the option not to treat