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A.D. Gallo and K. Westhoff

 

 

20.2.2.4 Education in Hospital

Education in hospital serves to strengthen the patient’s motivation and self-confidence, forming a bridge to normal life through creativity, games, and learning

•Hospital School:

–Lessons at the right age and level for children and adolescents of school age during their stay in hospital or outpatient clinic

–Regular contact with class teachers and school authorities (discussion of subjects to be covered, obtaining appropriate teaching materials, reintegration, implementation of supportive measures, change of class)

–Talks with patients and parents about school issues

–School visits

•Education through art and play:

–Development of a trusting relationship through regular contacts during creation and play

–Encouraging the working through of difficult hospital experiences in a play situation

–Involvement of parents and siblings, and support in educational matters

–Helping to create a childand adolescent-friendly atmosphere in the hospital In addition to these core professionals, pastoral care as well as art and music

therapy contributes significantly to psychosocial work. In many clinics, parents’ associations and foundations also provide supporting activities and self-help groups for affected families.

20.3The Practice of Pediatric Psycho-oncology

20.3.1 Objectives

At the center of psycho-oncological work is the promotion of individual and family resources during the crisis of disease, therapy, and – in some cases – dying, death, and mourning. The core is formed by a supportive relationship, oriented according to the physical, psychological, and social challenges and opportunities of the sick child and his or her social environment, and taking into account individual variations in coping and adapting. The objectives of psycho-oncological work include:

•Creation of a trusting and meaningful dialogue

•Provision of information and expert help

•Promotion of adaptive and active disease management, and the mobilization of resources to prevent or reduce disease burdens

•Treatment and support in crisis situations

20.3.2 Procedure

20.3.2.1 Investigative Phase

•The investigation that precedes every psycho-oncological treatment serves to identify the coping and adaptation strategies that are available to the sick child and the social environment. It also provides important basic information for the family,

20 Psychology and Psychosocial Issues in Children with Cancer

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and an initial evaluation of what they need from psycho-oncology. The objective of the investigation is not to uncover conflicts, but primarily to create the required support

•The first interview – if possible with the whole family – allows the psychooncologist a preliminary insight into the way that they are handling the burden of illness and therapy, and into family relationships and coping strategies

•The investigation is generally not completed after the first interview. As a result of situations that often change rapidly during the course of the therapy (e.g., clinical complications, relationship crises, relapse), the assessment must be continuously adapted and updated

Areas Investigated

•Family:

–Socioeconomic situation (place of residence and domestic situation, school, profession, finances, etc.)

–Social network

–Existing resources and problems

–Orientation and cohesion

–Cultural, ethical, and religious values

–Intrafamilial communication

–Communication with the outside, flexibility of boundaries

–Mutual distribution of responsibility and expectations

•Patient (and possibly siblings):

–Emotional, cognitive, and physical state of development

–Most significant individual coping strategies and their state of development

–Handling of earlier, critical life events

–Level of information and understanding

–Principal fears and concerns

–Feeling of self-worth, body image

–Compliance (willingness to cooperate)

–Relationships with parents, other adults, siblings, contemporaries, treatment team

–Ability to use relationships, maintain their own psychological equilibrium

•Parents (or their representatives and other significant figures):

–Most important coping strategies

–Handling of earlier, critical life events

–Level of information and understanding

–Compliance, trust in the treatment and the treatment team

–Principal anxieties

–Relationship between the partners (communication, emotionality, expectations)

–Relationship to the sick child and their siblings

–How the children are given information

–Ability and willingness to express themselves and to accept support from their environment and from psycho-oncologist

In practice, the investigation phase may often be difficult to distinguish clearly from the phase of treatment and support; both merge into each other. To prevent

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