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Index
A
Aberdeen varicose vein questionnaire (AVVQ), 18
B
Bowel dysfunction, 186
Breast cancer
development, 169
future research and clinical practice,
176
HRQOL, 170, 171
inclusion and exclusion criteria, 169
limitations, 175, 176
outcomes of interest, 170
patient and lesion characteristics, 170, 173
physical factors, 172, 173, 175
search strategy, 169
social and psychological factors, 170,
172–175
treatment, 170, 172–174
C
Cardiac transplantation, 226, 227
Classical Test Theory (CTT), 24
Colorectal liver metastases (CRLM), 121
Colorectal surgery
biopsychosocial impact of ostomy,
187
bowel dysfunction, 186
clinical guideline, 189
diverticular disease, 188
generic questionnaires, 182–185
IBD, 188
inherited cancer syndromes, 188
management, 187, 188
modular questionnaires, 182–185
morbidity and mortality rates, 181
outcomes, 189
perianal surgery, 188
specic questionnaires, 183–186
urogenital dysfunction, 186, 187
Consensus-based Standards for the selection of health
measurement instruments (COSMIN)
initiative, 29–31
Cost-minimisation analysis, 77, 78
Cost-utility analysis (CUA), 13, 14
COVID-19 pandemic, 228
Crohn’s disease, 186
D
Diverticular disease, 188
Dyspnoea, 228
E
Economic evaluation
empirical methods, 78, 79
EQ-5D instrument, 79
functioning and well-being, 79, 81
generic indices, 80, 81
measurement, 80, 81
MLWHF, 81
QALY, 78
QLMI questionnaire, 81
SAQ, 81
SF-36, 79, 80
TTO valuations, 79, 80
types, 77, 78
Electronic PROMs (ePROMs), 21
Employability, 222
Endometriosis, 65
F
Familial adenomatous polyposis (FAP), 188
G
Generalised estimating equations (GEE), 11
General linear model (GLM) approach, 10
Get It Right First Time (GIRFT), 191
Growth curve model, 10
© Springer Nature Switzerland AG 2023
T. Athanasiou et al. (eds.), Patient Reported Outcomes and Quality of Life in Surgery,
https://doi.org/10.1007/978-3-031-27597-5
241
242
Данная книга находится в списке для перевода на русский язык сайта https://meduniver.com/
Index
H
Head and neck cancer, 147
characteristics, 147
clinical practice, 153, 154
laryngeal cancer, 154–157
oropharyngeal cancer, 157, 158
prediction, 148, 154
QoL instruments, 148–153
Health related quality of life (HRQOL)
cognitive ability and functional status, 4
long term health conditions, 2
measurement, 4, 5
mental health, 4
morbidity and mortality, 2
overview, 1
public health initiatives, 4
Heart transplantation, 226, 227
I
Inammatory bowel disease (IBD), 188
Inherited cancer syndromes, 188
International Consortium for Health Outcomes
Measurement (ICHOM), 189
International index of erectile function (IIEF), 186
International Prostate Symptom Score (IPSS), 186
K
Kidney transplantation
disease-specic symptoms, 221
donation, 222, 223
employability and social-wellbeing outcomes, 222
history, 218
mental health, 222
paediatric transplantation, 223
physical health outcomes, 221, 222
QoL outcomes, 220
L
Laryngeal cancer, 154–157
Lindstrom’s quality of life model, 1, 2
Liver cancer
assessment, 124, 132–139
clinical outcome, 141
disease recurrence, 140–142
laparoscopic resection, 142
minor vs. major hepatectomy, 142
study characteristics, 124, 132
Liver transplantation
disease-related symptom, 224, 225
donor outcomes, 226
employment and social outcomes, 225
indications, 223
mental health, 225
paediatric transplantation, 225, 226
physical health, 225
socio-demographic factors, 223, 224
Low anterior resection syndrome (LARS), 186
Lower urinary tract symptoms (LUTS), 186
Lung cancer
age groups, 209
control population, 209, 210
GIRFT, 191
inclusion/exclusion criteria, 191
interest and data extraction, 192
limitations, 211
search strategy, 191
study selection process, 192
sublobar, lobectomy, sleeve, bilobectomy,
pneumonectomy, 207–209
surgical lung resection vs. SABR, 207
uniportal vs. multi-portal VATS lobectomy,
207
VATS vs. RATS, 206, 207
Lung transplantation, 226, 228
M
Maslow’s hierarchy of needs, 1, 2
Minimally important difference (MID), 11
Minnesota living with heart failure (MLWHF), 81
Mitral regurgitation (MR), 57
Mixed-effects model, 10, 11
Multi-attribute utility instrument (MAUI), 20
O
Observer reported outcomes (ObsRO), 18, 19
Off-pump coronary artery bypass (OPCAB), 57
Open transthoracic esophagectomy (TTE), 104
Oropharyngeal cancer, 157, 158
P
Pancreatic cancer
assessment, 124, 130–131
cause of, 121
clinical outcome, 139–141
study characteristics, 123–129
Patient reported outcome measures (PROMs)
categorical checklist, 19
clinical parameters, 17, 18
dichotomous values, 19
economic evaluation (see Economic evaluation)
instruments
development process, 22–24
disease specic tools, 20, 21
ePROMs, 21
evaluation and target endpoints, 21, 22
generic tools, 20
MAUI, 20
primary endpoints, 20
VAS, 20
Likert scale, 19
ObsRO, 18, 19
pictorial scale, 19
Index
243
rating scales, 19
semantic differential scale, 19
statistical analysis (see Statistical analysis)
systematic review (see Systematic review)
visual analogue scale, 19
Patient reported outcomes (PROs), 18, 19
Perianal surgery, 188
Pylorus-preserving pancreatoduodenectomy (PPPD),
139–141, 143
Q
Quality adjusted life years (QALYs), 12–14, 78
Quality of life (QoL)
after bariatric and metabolic surgery
assessment tools, 87, 88, 92
clinical and mathematical heterogeneity,
88
comorbidities, 93
data extraction, 87
factors, 94
improvement, 93
literature search, 87
mental changes, 88, 92
meta-analyses, 87–91, 93
overview, 86
personality traits, 94
physical changes, 88, 92
post surgical procedure, 92, 93
post-operative outcomes, 95
results reporting, 87
weight loss, 93
breast cancer (see Breast cancer)
colorectal surgery
biopsychosocial impact of ostomy, 187
bowel dysfunction, 186
clinical guideline, 189
diverticular disease, 188
generic questionnaires, 182–185
IBD, 188
inherited cancer syndromes, 188
management, 187, 188
modular questionnaires, 182–185
morbidity and mortality rates, 181
outcomes, 189
perianal surgery, 188
specic questionnaires, 183–186
urogenital dysfunction, 186, 187
complications and survival, 86
CRLM, 121
data analysis, 122, 123
data extraction, 122
denition, 85, 86, 147
development, 121
head and neck cancer, 147
characteristics, 147
clinical practice, 153, 154
instruments, 148–153
laryngeal cancer, 154–157
oropharyngeal cancer, 157, 158
prediction, 148, 154
HRQOL
cognitive ability and functional status, 4
long term health conditions, 2
measurement, 4, 5
mental health, 4
morbidity and mortality, 2
overview, 1
public health initiatives, 4
incidence, 121–122
inclusion/exclusion criteria, 122
limitations, 142, 143
Lindstrom’s Quality of Life Model, 1, 2
literature search methods, 122
liver cancer
assessment, 124, 132–139
clinical outcome, 141
disease recurrence, 140–142
laparoscopic resection, 142
minor vs. major hepatectomy, 142
study characteristics, 124, 132
lung cancer (see Lung cancer)
Maslow’s Hierarchy of Needs, 1, 2
outcomes, 86
overview, 1
pancreatic cancer
assessment, 124, 130–131
cause of, 121
clinical outcome, 139–141
study characteristics, 123–129
statistical analysis (see Statistical analysis)
theory evolution, 1, 3
thyroid cancer
active surveillance vs. surgery, 161
clinical practice, 153, 154
complications, 159, 160
emotional, functional, and social effects,
159
hemithyroidectomy vs. total thyroidectomy, 160,
161
incidence, 158
instruments, 148–153
prediction, 148, 154
prognosis, 159
radioactive iodine ablation vs. surgery, 160
RFA vs. surgery, 160
robotic vs. open thyroidectomy, 160
surveillance, 159
treatment, 159, 160
upper gastrointestinal surgery (see Upper
gastrointestinal (GI) surgery)
Quality of life after myocardial infarction (QLMI)
questionnaire, 81
R
Radioactive iodine (RAI), 159, 160
Radiofrequency ablation (RFA), 160
244
Данная книга находится в списке для перевода на русский язык сайта https://meduniver.com/
Index
Randomised controlled trials (RCTs), 69, 70, 112
blinding techniques, 68
cardiac surgery, 57–60
clinical outcomes, 68
denition, 55, 56
evidence, 55
external validity, 68
gastrointestinal surgery, 61–64
gynecological surgery, 65–67
internal validity, 69
operative vs. non-operative management, 68
reliability, validity and responsiveness, 68
surgical interventions, 68
surgical/minimally invasive procedure, 69
Rasch Measurement Theory (RMT), 24
Repeated measures model, 9
Robotic-assisted thoracoscopic surgery (RATS), 206, 207
S
Scientic Advisory Committee of the Medical Outcomes
Trust (SAC-MOT), 148
Seattle angina questionnaire (SAQ), 81
Sexual dysfunction, 186
Social-wellbeing outcomes, 222
Standard gamble (SG), 78
Statistical analysis
ceiling-oor effect, 11
data normality, 10
GEE, 11
growth curve model, 10
imputation methods, 12
life assessment methods, 14
limitations, 14, 15
MID, 11
missing data, 12
mixed-effects model, 10, 11
parametric data, 10
QALYs, 12–14
regression analysis, 10
repeated measures model, 9
scoring systems, 10
Stereotactic ablative radiotherapy (SABR), 207
Stoma-QOL score, 187
Systematic review
content validity, 33, 35, 37, 39
COSMIN initiative, 29–31
criterion validity, 43, 51
guidelines, 31
hypotheses testing for construct validity, 43, 51
internal structure evaluation, 39, 40, 43
interpretability and feasibility, 43
limitations, 53, 54
literature search, 31, 33
measurement error, 43, 51
measurement properties, 28, 29
reliability, 43, 51
reporting, 43
responsiveness, 43, 51
T
Thyroid cancer
active surveillance vs. surgery, 161
clinical practice, 153, 154
complications, 159, 160
emotional, functional and social effects, 159
hemithyroidectomy vs. total thyroidectomy, 160, 161
incidence, 158
prediction, 148, 154
prognosis, 159
QoL instruments, 148–153
radioactive iodine ablation vs. surgery, 160
RFA vs. surgery, 160
robotic vs. open thyroidectomy, 160
surveillance, 159
treatment, 159, 160
Time trade-off (TTO) approach, 78
Transoral laser microsurgery (TLM), 155, 156
Transplantation
ageing, 215
heart, 226, 227
HRQOL-PROMS assessment tools, 215–219
inclusion/exclusion criteria, 217
interest and data extraction, 217
kidney transplantation
disease-specic symptoms, 221
donation, 222, 223
employability and social-wellbeing outcomes, 222
history, 218
mental health, 222
paediatric transplantation, 223
physical health outcomes, 221, 222
QoL outcomes, 220
liver transplantation
disease-related symptom, 224, 225
donor outcomes, 226
employment and social outcomes, 225
indications, 223
mental health, 225
paediatric transplantation, 225, 226
physical health, 225
socio-demographic factors, 223, 224
lung, 226, 228
quality score, 217
search strategy, 217
value-based care, 227–231
U
Ulcerative colitis, 186
Upper gastrointestinal (GI) surgery, 113
cancer-specic questionnaire, 112
esophageal cancer
Barrett syndrome, 104
early-stage, 98
follow-up period, 104
long-term survivors, 98
oncological outcomes, 104
postoperative complications, 98–104
Index
245
routine monitoring, 98
systematic review, 98
techniques and routes, 105
TTE, 104
gastric cancer
components, 105
metabolic disorders, 105
open gastrectomy (OG), 110
physical functions, functioning roles, social
functions, 110
physical status, 105
rates of recovery, 105–109
results, 110
surgeon’s preference, 105
systematic review, 105–110
generic tools, 112
life-threatening conditions, 112
physical, social and emotional health, 111
prognosis, 111
RCT’s, 112
well-being, 111
Urogenital dysfunction, 186, 187
V
Video-assisted thoracoscopic surgery (VATS), 206, 207
Visual analogue scales (VAS), 20, 79
Vocal handicap Index (VHI), 155, 156
W
Well-being, 2
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