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Dementia, Delirium, andDepression
287
common in the elderly, so it is important to consider a longer duration of treatment. The PROSPECT trial demonstrated that geriatric patients benet from longer treatment. However, it is also important to assure compliance and follow-up with the patient to assess tolerance to the antidepressant. Other studies have found that geriatric patients had a lower mortality rate after more than 4years of treatment for depression with antidepressants and psychotherapy as compared to those receiving usual care [47]. Maintenance therapy should be considered for patients with one or more episodes of depression and for those deemed at high risk for recurrence. For a rst episode of depression between 6 and 12months of antidepressant ther­apy should be given before reassessment that evaluates continued benet and potential for relapse. Patients with three or more lifetime episodes of depression should be considered for lifelong antidepressant therapy [46]. Special consider­ation should be made regarding stratication for suicidal risk. Suicide rates are almost twice as high in the elderly as compared to the general population, and alarmingly most older adults who commit suicide have seen a clinician within the previous month.
Psychotherapy
Unfortunately, there are still signicant knowledge gaps regarding various thera­peutic modalities for depression and their efcacy. Recent research has demon­strated promise in the use of psychotherapy in the elderly. The major available outpatient psychotherapies are as follows: cognitive behavioral therapy, problem solving therapy, life review therapy, interpersonal therapy, and psychodynamic psy­chotherapy. However, psychotherapy is not commonly used as a treatment for late depression; the major limiting factors being therapist availability, resident access, and health insurance coverage. As we enter the current decade new modalities for therapeutic delivery are being implemented, the most common being telehealth. This intervention is playing a big role in overcoming barriers. However, telehealth has its limitations, because the treatment is limited by the level of executive func­tioning of the patient and patients may perceive their therapeutic relationship with the practitioner as weaker than traditional delivery methods.
COVID-19
COVID-19 has presented a signicant burden on assessment and treatment of men­tal health in the elderly. Many of the countermeasures implemented as a protective measure against the pandemic have paradoxically worsened mental health indices in institutionalized individuals. The resultant isolation and loneliness experienced by such vulnerable populations had a severe antagonistic effect on well-being in nurs­ing facilities. Studies have shown increased anxiety and depression in residents of Post-Acute and Long-Term Care settings. Telemedicine may serve to alleviate this social burden, but its effect has yet to be validated.
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P. A. Fenstemacher et al.
Summary
Dementia, delirium, and depression comprise a diagnostic challenge for the clini­cian as one, two, or all three conditions may occur in the same individual at the same time or separately over time. An understanding of each of these three conditions will assist the practitioner in providing appropriate clinical evaluation, intervention, and treatment. Evaluation and treatment should be tailored to the goals of care of each resident, guided by the resident’s prognosis, level of functioning, comorbidities, and life expectancy. It is essential that monitoring of response to diagnostic and thera­peutic interventions be continued, and to consider consultation with specialists or hospitalization if needed. The patient and family should be involved in decision­making in order to accommodate choice, preferences, and goals of care that evolve or change over time.
Pearls for the Practitioner
Dementia
• Dementia is a chronic, irreversible, progressive condition often with insidi-
ous onset.
• There is a high prevalence of dementia as a primary diagnosis in the PA/LTC
setting.
• Residents with dementia can exhibit challenging or disruptive behavior, as a
natural part of their disease process or unmet needs.
• Remember the potentially reversible causes of dementia and the frequent occur-
rence of a mixed dementia.
Delirium
• Delirium is a potentially life-threatening condition.
• Hyperactive delirium is more easily recognizable than hypoactive delirium.
• Interventions to prevent delirium have been shown to be effective.
• Be aware that many medications and acute medical conditions can precipitate
delirium in frail older adults.
Depression
• The prevalence of a depressive disorder or depressive symptoms in the long-term
care population has been estimated to be as high as 70%.
• Depression is not an inevitable consequence of aging.
• Depression frequently occurs in the setting of the other medical conditions.
• Several commonly used medications can cause symptoms of depression, even
antidepressants.
Websites
• Alzheimer’s Association, www.alz.org.
• American Geriatrics Society, www.americangeriatrics.org.
• American Medical Directors Association for their Clinical Practice Guidelines,
www.amda.com.
Dementia, Delirium, andDepression
289
• Hospitalized Elder Life Program for information on delirium, www.elderlife.med.
yale.edu.
• Folstein Mini Mental Status Exam (MMSE), the ofcial form has been copy-
righted and must be purchased from www.minimental.com.
• St. Louis University Mental Status Exam (SLUMS) is available at: http://med-
school.slu.edu/agingsuccessfully/pdfsurveys/slumsexam_05.pdf.
• St. Louis University Geriatrics www.aging/SLU.edu.
References
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20. Conner KQ, Copeland VC, Grote NK, etal. Mental health treatment seeking among older adults with depression: the impact of stigma and race. Am J Geriatr Psychiatry. 2010;18(6):531–43.
21. American Medical Directors Association. Delirium and acute problematic behavior in the long-term care setting clinical practice guideline. Columbia, MD: AMDA; 2008.
22. Inouye SK.Delirium in older persons. N Engl J Med. 2006;354:1157–65.
23. Fick DM, Agostini JV, Inouye SK.Delirium superimposed on dementia: a systematic review. J Am Geriatr Soc. 2002;50:1723–32.
24. Forsberg MM.Delirium update for post-acute care and long-term care settings: a narrative review. J Am Osteopathic Assoc. 2017;117(1):32–8.
25. Ozbolt LB, Paniagua MA, Kaiser RM.Atypical antipsychotics for the treatment of delirious elders. J Am Med Dir Assoc. 2008;9:18–28.
26. Elie M, Cole MG, Primeau FJ, Bellavance F. Delirium risk factors in elderly hospitalized patients. J Gen Intern Med. 1998;13:204–12.
27. Fong TG, Tulebaey SR, Inouye SK.Delirium in elderly adults: diagnosis; prevention and treat­ment. Nat Rev Neurol. 2009;5:210–20.
28. Marcantonio ER, Ngo LH, O’Connor M, et al. 3D-CAM: derivation and validation of a 3- minute diagnostic interview for CAM-dened delirium: a cross-sectional diagnostic test study. Ann Intern Med. 2014;161(8):354–61.
29. Clegg A, Siddiqi N, Heaven A, Young J, Holt R.Interventions for preventing delirium in older people in institutional long-term care (Review). Cochrane Library; 2017.
30. Jung H, Meucci M, Unruh MA, etal. Antipsychotic use in nursing home residents admitted with hip fracture. J Am Geriatr Soc. 2013;61(1):101–6.
31. Seitz D, Purandare N, Conn D.Prevalence of psychiatric disorders among older adults in long­term care homes: a systematic review. Int Psychogeriatr. 2010;22(7):1025–39.
32. Hoover DR, Siegel M, Lucas J, Kalay E, Gaboda D, Devan DP, Crystal S.Depression in the rst year of stay for elderly long-term nursing home residents in the U.S.A.Int Psychogeriatr. 2010;22(7):1161–71.
33. American Medical Directors Association. Depression clinical practice guideline. Columbia, MD: AMDA; 2003.
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management/depression/wfmh_paper_depression_wmhd_2012.pdf?ua=1.
35. Barry LC, Murphy TE, Gill TM.Depressive symptoms and functional transitions over time in older persons. Am J Geriatr Psychiatry. 2011;19:789–91.
36. Alexopoulos GS, Buckwalter K, Olin J, etal. Comorbidity of late life depression: an opportu­nity for research on mechanisms and treatment. Biol Psychiatry. 2002;52:543–8.
37. Cepoiu M, McCusker J, Cole MG, etal. Recognition of depression in older inpatients. J Gen Intern Med. 2007;22:559–64.
38. Jeste DV, Blazer DG, First M.Aging-related diagnostic variations: need for diagnostic criteria appropriate for elderly psychiatric patients. Biol Psychiatry. 2005;58:265–71.
39. Rothschild AJ. The diagnosis and treatment of late-life depression. J Clin Psychiatry. 1996;57(Suppl5):5–11.
40. Alexopoulos GS.Depression in the elderly. Lancet. 2005;365(9475):1961–70.
41. Peskind ER.Management of depression in long-term care of patients with Alzheimer’s dis­ease. J Am Med Dir Assoc. 2003;1(Supp Nov/Dec):S141–5.
42. Vilalta-Franch J, Lopez-Pousa S, Llinas-Regla J, Calvo-Perxas L, Merino-Aguado J.Depression subtypes and 5-year risk of dementia and Alzheimer disease in patients aged 70 years. Int J Geriatr Psychiatry. 2013;28(4):341–50.
43. Koopmans RTCM, Zuidema SU, Leontjevas R, Gerritsen DL. Review: comprehensive assessment of depression and behavioral problems in long-term care. Int Psychogeriatr. 2010;22(7):1054–62.
44. Azulai A, Walsh CA.Screening for geriatric depression in residential care facilities: a system­atic narrative review. J Gerontol Social Work. 2014;
Dementia, Delirium, andDepression
45. Zisook S, Ganadijan K, Moutier C, et al. Sequenced Treatment Alternatives to Relieve Depression (STAR*D): lessons learned. J Clin Psychiatry. 2008;69:1184–5.
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47. Gallo JJ, Bogner HR, Morales KH, etal. The effect of primary care practice-based depression intervention on mortality in older adults: a randomized trial. Ann Intern Med. 2007;146:689–98.
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Ethical andLegal Issues inPost-Acute
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andLong-Term Care
DavidA.Smith andRandallD.Huss
Introduction
Ethical dilemmas and legal issues commonly occur in post-acute and long-term care. Health care ethics provides a framework for the application of values (patient, caregiver, and societal) to the process of clinical/medical decision-making. This process requires the weighing of values, facts, and prognostication in order to pro­duce a just and supportable decision. However, clinicians/practitioners often encounter competing values, e.g., the right of self-determination of an individual versus the interests of society as a whole, and thus must make decisions based on the facts, as well as the likelihood and consequences of various potential outcomes.
D. A. Smith (*) Geriatric Consultants of Central Texas, Brownwood, TX, USA
R. D. Huss Department of Family Medicine and Geriatrics, Mercy Clinic, Rolla, MO, USA
© The Author(s), under exclusive license to Springer Nature Switzerland AG 2023 P. Winn et al. (eds.), Post-Acute and Long-Term Care Medicine, Current Clinical Practice, https://doi.org/10.1007/978-3-031-28628-5_15
293
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D. A. Smith and R. D. Huss
The law is a society’s compilation of rules that are intended to be uniformly applied (equal protection under the law), mandatory (ignorance of the law is no excuse), and modiable only through the legislative process (the rule of law). Fortunately, the tenets of health care ethics continue to be considered in the estab­lishment of laws that interface with the practice of medicine. Challenging situations often arise for practitioners when applying the principles of health care ethics within the constraints of existing State and Federal law. All state and federal surveys of long-term care facilities follow regulations that are dictated by law. Clinicians are admonished to know the laws of the jurisdiction in which they practice and to seek legal counsel for clarication when needed. The contents of this chapter are educa­tional only and not formal legal advice.
Principles ofHealth Care Ethics
The ve principles of health care ethics include autonomy, benecence, justice, non-malecence, and delity. These principles do not stand alone or in a hierarchy,
but must be considered in the context of each other. Frequently these ethical prin­ciples compete. However, a decision based upon one of the ethical principles usu­ally predominates.
Autonomy is the principle attesting to an individual’s right to sovereignty over oneself. It encompasses the right to self-determination and privacy. The law recog­nizes the right to privacy in statutes that codify the privacy of medical records such as the Health Insurance Portability and Accountability Act (HIPAA), informed con­sent, and the individual’s right to decline life-sustaining treatment. Mental incapac­ity may alter the implementation of the principle of autonomy.
Benecence is the ethical principle that holds a practitioner responsible to do good to others. Good Samaritan laws are designed to protect individuals when they act by this principle. Similarly, laws that require health care professionals to report suspected elder abuse is an example of this principle. Laws related to guardianship and other forms of surrogate decision-making for those either adjudicated incompe- tent in a court of law or clinically determined not to have mental capacity derive from the principle of benecence. Benecence also holds that any procedure or intervention proposed for a patient by a health care professional must be capable of providing a benet to the patient, and that by its application, does not provide greater burden than benet. Ethically, there is no obligation for a health care profes­sional to provide or even offer an intervention incapable of providing a benet or whose burden is greater than any benet to a patient (futile care). This stands as an ethical check (to do good to others) versus unbridled autonomy. An example where this may apply in PA/LTC are decisions in patients with advanced dementia who fail oral feeding, and the provision of tube feeding is raised and/or suggested by staff or family in an attempt to provide adequate nutrition and hydration.
Ethical andLegal Issues inPost-Acute andLong-Term Care
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295
Non-malecence, a corollary to benecence, holds that it is the responsibility of the practitioner to do no harm, to not provide interventions whose burdens or poten­tial harm would outweigh benet. Avoiding unnecessary surgery and optimizing patient safety are examples. Laws regarding medical malpractice are based on this principle and claims for punitive damages stem from what plaintiffs perceive as a breach of this principle.
Justice is the ethical principle espousing the responsibility of medical profes­sionals to treat patients equitably (fairly) and to consider not only one’s patient, but also the good of society. An example of this principle is when a physician assists with terminating the driving privileges of an unsafe driver. This principle also entails the equitable allocation of society’s limited healthcare dollars and resources (dis- tributive justice).
Finally, delity, a corollary to the principle of justice, involves the medical prac- titioner’s responsibility to keep the terms of the “doctor/patient contract.” Truthfulness and substantial compliance with informed consent are components of delity as is non-abandonment. Practitioners should not summarily cease to act for the benet of one’s patient even when that patient has not lived up to their side of the doctor/patient contract (e.g., noncompliance) or exerted their autonomy and chosen a course of medical action with which the physician disagrees. In such cir­cumstances the physician should attempt to provide the best possible outcome in the context of the patient’s treatment choices. Alternatively, practitioners may exit the doctor/patient contract by providing emergency care as needed, while affording the patient sufcient time to become established with another health care professional.
Historically, physicians often made decisions for patients based on the prin­ciple of benecence without an appreciation of patient autonomy, a practice known as paternalism. Society’s response was a consumer movement, which included the Patient’s Bill of Rights. While needed, it may have inadvertently resulted in patient autonomy to supersede other ethical principles. We must rec­ognize that the principles of autonomy, benecence, non-malecence and justice all be considered to guide ethical decision-making. For example, autonomy and the right to privacy could be subordinate to the principles of benecence and justice in the case of an individual with a contagious illness posing a public health threat who refuses to follow guidelines to prevent the transmission of the disease to others. Conversely, benecence and justice (the State’s interest in pro­tecting life) would be subordinate to autonomy when a capacitated adult Jehovah’s Witness declines a lifesaving blood transfusion. However, if a patient were a child below the age of consent, the State’s interest in protecting life would prevail.
The vast majority of applications of these ethical principles are not played out in the legal arena, but rather in everyday patient/practitioner medical decision-making. The practice of medicine within the long-term care continuum commonly involves issues related to diminished mental capacity and mental illness, treatments with
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narrow risk/benet ratios, end-of-life care, elder abuse and exploitation, and utiliza­tion of limited and expensive medical resources. Practice in post-acute and long­term care challenges every practitioner to abide by these principles and to competently apply them with skill and condence. Input from the interdisciplinary team and from the patient/family is essential to applying these principles and to choosing an appropriate course of action. As such, every practitioner must be able to effectively communicate and to apply and balance these principles to the specics of the patient’s clinical scenario and to them succinctly record his/her reasoning in the medical record.
Resident Rights
When an individual enters any facility or program within the long-term care con­tinuum they do not lose their fundamental constitutional rights. Providers have an obligation to inform residents of their rights and to encourage and assist them in exercising these rights. It is illegal for a facility, program, or any employee to infringe upon a person’s human rights by threatening, coercing, intimidating, or retaliating against a resident who is exercising their rights. A facility or program should educate residents on how to use the complaint process if they feel their human rights are being violated. Specic responsibilities of PALTC institutions are further described in the Abuse, Neglect, and Exploitation section of this chapter. A synopsis of Resident rights are listed in state and federal regulations, which are summarized in Table1. For full text see [1].
A resident’s rights may only be restricted when it is necessary to protect the resi­dent or another individual (resident, staff or family) from potential harm, or to pro­tect the rights of another resident, e.g., infringement on another’s privacy. Facility rules must be fully disclosed before admission, such as scheduled smoking breaks or a nonsmoking policy. These can only be enforced if the resident or their surrogate have agreed to these rules as a condition of admission. Furthermore, problem behav­iors may be addressed by practitioners through behavior modication program­ming, behavioral contracting with the resident, or as a condition of continued residence in the facility if done as part of a therapeutic plan of care and in keeping with nursing facility regulations. A resident with mental incapacity still retains all of the rights outlined in Table1. However, if a resident lacks capacity, their rights would be advocated by their legally designated surrogate decision-maker. For instance, a mentally incapacitated resident with diabetes mellitus who wants to spend their money on candy and soda may be care planned to receive budgeted amounts of spending money from their facility account and to be encouraged to choose more healthy snacks, given that the resident’s surrogate decision-maker is in agreement. Facilities and practitioners should be aware that litigation alleging
infringement on a resident’s human rights may not be covered under malpractice insurance.
Ethical andLegal Issues inPost-Acute andLong-Term Care
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Synopsis of CMS’ statement of resident rights
Table 1
297
Your rights and protections as a nursing home resident
What are my rights in a nursing home?
As a nursing home resident, you have certain rights and protections under federal and state law that help ensure you get the care and services you need. You have the right to be informed, make your own decisions, and have your personal information private
The nursing home must tell you about these rights and explain them in writing in a language you understand. They must also explain in writing how you should act and what you’re responsible for while you’re in the nursing home. This must be done before or at the time you’re admitted, as well as during your stay. You must acknowledge in writing that you got this information
At a minimum, federal law species that nursing homes must protect and promote the following rights of each resident. You have the right to:
Be treated with respect Make your own schedule Participate in activities Be free from discrimination based on race, color, national origin, disability, age, or religion Be free from abuse and neglect Be free from restraints, physical or chemical Make complaints without fear of punishment: the nursing home must address the issue
promptly Get proper medical care: To be fully informed of your total health status, involved in choice of
doctor, participate in decisions that affect your care, take part in developing your care plan, have access to your medical records, to express any complaints you have about your care or treatment, to create advanced directives in accordance with state law, and to refuse participation in experimental treatment
Have your representative notied: If you are involved in an accident, your physical, mental or psychosocial status worsens, you have a life-threatening condition, you have medical complications, your treatment needs to change signicantly, or the nursing home decides to transfer or discharge you
Get information on services and fees: To be told in writing about all nursing home services and fees before admission and if these change. Before admission, the nursing home must tell you orally and in writing and display written information on how to apply for and use Medicare/ Medicaid benets
Manage your money: Or choose someone you trust, have access to your money and nancial records
Get proper privacy, property, and living arrangements: To keep and use your personal belongings, have private visits, make or get private phone calls, have privacy in sending or receiving mail or emails, be protected from theft, share a room with your spouse if both agree, be notied before changes in roommate or room (taking your preferences into account), and to review the nursing home’s health and re safety inspections
Spend time with visitors: At any time not interfering with care or privacy of others, and to see any person for help with health, social, legal, or other services
Get social services: For counseling, solving problems with other residents, help in contacting legal or nancial professionals, and discharge planning
Leave the nursing home: For visits or leave of absence (consistent with health insurance rules) or to move out
(continued)