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10 Physical Management of Velopharyngeal Inadequacy
Surgical Management of Velopharyngeal Inadequacy
Prosthodontic Management of Velopharyngeal Inadequacy
References
11 Early Intervention for Infants and Toddlers
Early Monitoring and Intervention
Intervention With the Prelinguistic Child
Parents' Expectations of Palatal Surgery
Lexical and Phonological Growth Following Surgery
Oral Motor “Exercises”: A Warning
Looking Ahead
Summary
References
12 Speech Therapy for Cleft-Related Misarticulations
Deciding What Is “Treatable” and What Is Not
Deciding on the Treatment Approach
Initiating Treatment
Parents, Teachers, and the Speech Notebook
Useful Therapy Materials
Therapy for Cleft-Related Speech Errors
Summary
References
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13 Four Multianomaly Craniofacial Conditions That Include Clefts
Van Der Woude Syndrome
Pierre Robin Sequence
Stickler Syndrome
Velocardiofacial Syndrome
References
Index
Oral Cavity: Place of Production Directions and Locations
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Place Map for High Pressure Consonants
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Copyright
3251 Riverport Lane St. Louis, Missouri 63043
THE CLINICIAN'S GUIDE TO TREATING CLEFT PALATE SPEECH, EDITION 2 ISBN: 978-0-323-33934-6
Copyright © 2017 by Elsevier Inc. All rights reserved.
No part of this publication may be reproduced or transmied in any form or by any means, electronic or mechanical, including photocopying, recording, or any information storage and retrieval system, without permission in writing from the publisher. Details on how to seek permission, further information about the Publisher's permissions policies and our arrangements with organizations such as the Copyright Clearance Center and the Copyright Licensing Agency, can be found at our website:
www.elsevier.com/permissions.
This book and the individual contributions contained in it are protected under copyright by the Publisher (other than as may be noted herein).
Notices Knowledge and best practice in this field are constantly changing. As new research and experience broaden our understanding, changes in research methods, professional practices, or medical treatment may become necessary. Practitioners and researchers must always rely on their own experience and knowledge in evaluating and using any information, methods, compounds, or experiments described herein. In using such information or methods they should be mindful of their own
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safety and the safety of others, including parties for whom they have a professional responsibility. With respect to any drug or pharmaceutical products identified, readers are advised to check the most current information provided (i) on procedures featured or (ii) by the manufacturer of each product to be administered, to verify the recommended dose or formula, the method and duration of administration, and contraindications. It is the responsibility of practitioners, relying on their own experience and knowledge of their patients, to make diagnoses, to determine dosages and the best treatment for each individual patient, and to take all appropriate safety precautions. To the fullest extent of the law, neither the Publisher nor the authors, contributors, or editors, assume any liability for any injury and/or damage to persons or property as a maer of products liability, negligence or otherwise, or from any use or operation of any methods, products, instructions, or ideas contained in the material herein.
Previous edition copyrighted 2016.
International Standard Book Number: 978-0-323-33934-6
Executive Content Strategist: Kellie White Content Development Manager: Jolynn Gower Publishing Services Manager: Julie Eddy Design Direction: Ashley Miner
Printed in the United States of America
Last digit is the print number: 9 8 7 6 5 4 3 2 1
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Preface
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The Care of a Child With a Cleft
Speech-language pathologists who work in the public schools or other nonmedical seings are unlikely to encounter a child or adult with a cleft palate or other craniofacial birth defect more than a few times in their entire career. When they do, they may feel hesitant to devise a treatment plan for that individual if their training did not include a course in cleft palate or if that training was so long ago that they fear their knowledge and clinical skills may be outdated. Each of the authors of this book has had multiple telephone calls and e­mails from clinicians expressing exactly that fear. The goal of this book is to provide enough information so that clinicians can feel comfortable in the diagnosis and treatment of speech for an individual with a cleft palate or other form of velopharyngeal dysfunction. In addition, we hope this book can help in the education of the graduate students who will soon become speech pathologists.
This second edition of The Clinician's Guide is a consolidation of the previous edition (2006) and portions of the fourth edition of Cleft Palate Speech (Peterson-Falzone, Hardin-Jones, and Karnell, 2010). The laer book is no longer in print.
Although there are many hard-working, knowledgeable surgeons, dentists, orthodontists, speech-language pathologists, and other clinicians devoting large chunks of their professional time to caring for individuals with clefts and other congenital craniofacial disorders, a basic premise of this book is that care for such a patient is likely to be fragmented and inadequate if it is not provided by an interdisciplinary team. On-site interaction among professionals in plastic and reconstructive surgery, speech-language pathology, orthodontics, dentistry, pediatrics, nursing, oral surgery, otolaryngology, and psychology or social work (preferably both) is key to maintaining a high standard of integrated and well­coordinated care (Dailey and Wilson, 2015). The American Cleft Palate-Craniofacial Association (ACPA) makes this point very clearly in its “Standards for Cleft and Craniofacial Teams” document, and
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also in its “Parameters for Evaluation and Treatment…” document first published in 1993 and twice revised and upheld by consensus of the Association in the past 22 years. The boom line is simply that team care is essential.
If you are a speech-language pathologist in the public schools or other nonmedical seing, you may well be the key professional who first identifies the child in need of a team or you may be the first professional who realizes that the care previously provided for the child with a cleft has been inadequate. Never underestimate how important your observations and evaluations are to the child, the family, and whoever is providing the surgical and dental management. The treating team needs your input. You are the one who sees the child on a regular basis, while the team may see him or her only once every few weeks or months. Dailey and Wilson (2015) stress the importance of good communication across treatment seings.
Just as important: If you are the one who finds a child NOT being treated by an interdisciplinary team, do not let a “gatekeeper” in the office of a third-party payer tell you that referral to such a team is not necessary. Teams usually have someone on staff who knows how to deal with third-party payer obstinacy.
Following are three scenarios: In the first, a child with nasal emission, hypernasal resonance, and perhaps even compensatory misarticulations turns up in your caseload and has had no previous diagnostic work-up, although he may have had previous speech therapy (either appropriate or inappropriate). In the second, a child in your caseload has a repaired cleft palate or other source of inadequate velopharyngeal closure but is clearly in need of more physical management. In the third scenario, you have a child or adult who is already under team care but you need to interact with the team in order to develop a good therapy plan for his current speech problems. All of these scenarios demand that you make and maintain contact with the professionals on the interdisciplinary team.
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The Long-Term Perspective on Care for the Child With a Cleft Palate
Following is a typical schedule of the evaluations and procedures that will constitute the long-term care for children born with clefts (children born with cleft lip only will generally not require such rigorous care). Please keep in mind that the “schedule” will vary somewhat across teams.
• At birth: neonatal evaluation, including hearing assessment if possible, and referral to an interdisciplinary team, as well as to local pediatrician; team evaluation as soon as possible; counseling for parents as needed
• Monitoring of weight gain
• Evaluation of baby and family by dysmorphologist/geneticist as soon as the family is emotionally ready for it
• Age 3 months: surgical closure of cleft lip and initial reconstruction of the nose (often preceded by lip-taping or nasoalveolar molding)
• Age 6 months: follow-up team evaluation
• Age 12 to 18 months: another team evaluation; surgical closure of palate, preferably around 1 year of age (may take place earlier)
• Age 2 years: team evaluation
• Annual or semiannual team evaluations, scheduling dependent upon the needs of the particular child
• Lip-nose revision if necessary before child enters school
• First-stage orthodontic care once the first molars have erupted (approximately age 7 or 8 years)
• Alveolar bone-grafting if necessary, preferably after completion of orthodontic preparation, specifically expansion of the maxilla so that the occlusion is stabilized in the correct position
• Secondary velopharyngeal surgery whenever it is determined that this system is not functioning adequately
• Phase II of orthodontic treatment, beginning after the eruption of most of the permanent teeth (e.g., approximately 12 to 14 years of age)
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