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3 Pediatric Infectious Diseases andHearing Loss
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73. Shikano H, Ohnishi H, Fukutomi H, etal. Mondini dysplasia with recurrent bacterial meningi­tis caused by three different pathogens. Pediatr Int. 2015;57:1192–5.
74. Hong H, Budhathoki C, Farley JE.Increased risk of aminoglycoside-induced hearing loss in MDR-TB patients with HIV coinfection. Int J Tuberc Lung Dis. 2018;22:667–74.
75. Chen L, Ye S.Tuberculous otitis media complicated by meningitis-induced bilateral sensori­neural hearing loss: a case report. Ear Nose Throat J. 2021;100(3 suppl):s225–8.
76. Sebastian SK, Singhal A, Sharma A, Doloi P.Tuberculous otitis media -series of 10 cases. J Otol. 2020;15:95–8.
77. Masterson T, El-Hakim H, Magnus K, Robinson J. A case of the otogenic variant of Lemierre’s syndrome with atypical sequelae and a review of pediatric literature. Int J Pediatr Otorhinolaryngol. 2005;69:117–22.
78. Lantos PM, Blanton LS. The rickettsioses: a practical update. Infect Dis Clin North Am. 2019;33:213–29.
79. Friedmann I, Frohlich A, Wright A.Epidemic typhus fever and hearing loss: a histological study (Hallpike collection of temporal bone sections). J Laryngol Otol. 1993;107:275–83.
80. Lo Monaco A, Govoni M, Zelante A, etal. Whipple disease: unusual presentation of a protean and sometimes confusing disease. Semin Arthritis Rheum. 2009;38:403–6.
81. Anderson JL, Levy PT, Leonard KB, Smyser CD, Tychsen L, Cole FS.Congenital lympho­cytic choriomeningitis virus: when to consider the diagnosis. J Child Neurol. 2014;29:837–42.
82. Torre P 3rd, Zeldow B, Hoffman HJ, etal. Hearing loss in perinatally HIV-infected and HIV­exposed but uninfected children and adolescents. Pediatr Infect Dis J. 2012;31:835–41.
83. Worme M, Chada R, Lavallee L.An unexpected case of Ramsay hunt syndrome: case report and literature review. BMC Res Notes. 2013;6:337.
84. McKenna MJ. Measles, mumps, and sensorineural hearing loss. Ann N Y Acad Sci. 1997;830:291–8.
85. Olajuyin OA, Olatunya OS, Olajide TG, etal. Aetiologies of profound bilateral sensorineural hearing loss among children in Ekiti State, South Western Nigeria. Pan Afr Med J. 2021;38:98.
86. Morita S, Fujiwara K, Fukuda A, etal. The clinical features and prognosis of mumps- associated hearing loss: a retrospective, multi-institutional investigation in Japan. Acta Otolaryngol. 2017;137(sup565):s44–7.
87. Aldè M, Di Berardino F, Marchisio P, etal. Sudden sensorineural hearing loss in children with dual positivity of serum anti-EBV IgM and anti-CMV IgM antibodies: a preliminary study. Minerva Pediatr (Torino). 2021.
88. Erzurum S, Kalavsky SM, Watanakunakorn C. Acute cerebellar ataxia and hearing loss as initial symptoms of infectious mononucleosis. Arch Neurol. 1983;40:760–2.
89. Dusan M, Milan S, Nikola D.COVID-19 caused hearing loss. Eur Arch Otorhinolaryngol. 2022;279:2363–72.
90. Jafari Z, Kolb BE, Mohajerani MH.Hearing loss, tinnitus, and dizziness in COVID-19: a sys­tematic review and meta-analysis. Can J Neurol Sci. 2022;49:184–95.
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Communicating withaChild
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withHearing Loss
CanCemalCingi andDilekTuranEroğlu
4.1 Introduction
When a child’s hearing screening reveals that s/he has a hearing problem, the family is often upset. During this time, parents feel oppressed by the sadness and the deci­sions to be made. Besides sadness and anxiety, they feel helpless about what awaits them and what needs to be done next. Families should be told what awaits them, what steps must be taken, and the importance of early diagnosis. Language forms, the basis of future communication skills, and adequate input should be emphasized. With impartial information, parents should be offered alternative ways and free to make the right choice for the child and themselves. Language-speech and hearing professionals should tell families what needs to be done for the child to establish healthy communication, regardless of prejudices, and guide how to approach the issue in this long story [1].
Communicating with deaf and hard-of-hearing children may not be uent as they may have language improvement delays. Some parameters of enabling the develop­ment of communication skills by supporting their speaking and language skills depend on the answers to the following questions [2]:
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C. C. Cingi (*) Communication Design and Management Department, Faculty of Communication Sciences, Anadolu University, Eskişehir, Türkiye e-mail: ccc@anadolu.edu.tr
D. T. Eroğlu Department of Foreign Languages, School of Foreign Languages, Anadolu University, Eskişehir, Türkiye e-mail: dteroglu@anadolu.edu.tr
© The Author(s), under exclusive license to Springer Nature Switzerland AG 2023 A. E. Arısoy et al. (eds.), Hearing Loss in Congenital, Neonatal and Childhood Infections, Comprehensive ENT, https://doi.org/10.1007/978-3-031-38495-0_4
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How serious is the hearing problem? What are the parents’ expectations? Is the child’s rst language sign language? Is a hearing aid or cochlear implant used or not? Does the child attend a school for the deaf?
This study emphasizes the crucial points of making children with hearing impair­ment able to communicate themselves as others and underlines that achievement is possible with the necessary precautions and supporting techniques. The essential tools to help them and crucial awareness details are stated in this chapter [2].
C. C. Cingi and D. T. Eroğlu
4.2 Communication Tools forHard-of-Hearing or
Deaf People
The most critical concept about hearing impairment is that they have difculty in communicating with their environment due to their hearing impairment. As speak­ing is a process that develops by imitating the sounds heard from the rst months of life, early diagnosis of a hearing problem is crucial. Various pieces of training are also available for individuals whose hearing impairment is subsequently detected. Throughout the way, one can learn to speak and use the voice. Most people with hearing impairment can communicate with people around them through lip-reading, writing, and sign language. Below are some of the alternatives parents can choose for their kids [1].
4.3 Listening andSpeaking Skills
This methodology supports the idea that children can learn to listen and speak on the condition that timely diagnosis, treatment, and consistent use of the necessary aids are in action. It includes the “1-3-6” rule: Identication of hearing loss at one month, appropriate amplication at 3months, and family-centered early interven­tion services that support the development of listening and spoken language at 6months. The family must adopt the rules and never forget the importance of using those aids. The aids have to be used consistently no matter how hard the child tries to take them off. A regular assessment of hearing is a must to see how functional the devices are and to check the changes if there are any.
4.4 The Cued Speech
It is a technique that includes eight hand shapes in four different positions (known as cues) with mouth shapes to show all the sounds of spoken language differently. The National Cued Speech Association has dened cued speech as “a visual mode of communication.” This is known as a sound-based visual communication system.
4 Communicating withaChild withHearing Loss
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It is based on making simple hand movements around the mouth to distinguish sounds identical to the lip reader. Cued speech has been adapted to over 50 lan­guages and facilitates language development, speech development, reading skills, and communication. Its benets can be seen in treatment to improve speechreading and literacy [1].
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4.5 Sign Language
There is no universal sign language. Different languages have different sign lan­guages. To illustrate, there are two sign languages in Belgium: French Belgian and Dutch sign language, or Spain has two sign languages, Spanish and Catalan sign language. Even the same language has different sign languages. For example, American Sign Language (ASL) is one of the natural languages with the same lin­guistic features as spoken languages but grammatically different from English. Each culture and language has its own sign language features, making it hard to communicate in a different language. That is to say, if someone uses ASL, s/he will not be able to interact in the same way in British Sign Language (BSL). The critical point here is that if parents want their children to use sign language, they also need to learn how to communicate using it [1, 2].
4.6 Total Communication
Total communication (TC) includes all communication tools, such as body and sign language, gestures, symbols, ngerspelling, facial expressions, listening and speak­ing, lip reading, and so on, to improve language skills and to communicate what they mean in a total sense. Information is provided to the child in both audio and visual formats. This allows the child to use the information best suited to their needs. Kids with TC programs generally use amplications like hearing devices or cochlear implants. Children have different perceptions related to TC.Some think all they need is TC, whereas, others think that they need to communicate fully with some other techniques. Families should know their kids’ perception of it and ensure that their children’s needs are met utterly [1, 3].
4.7 Auditory: Verbal Method
The method helps stimulate existing hearing remnants of children through appropri­ate hearing aids. It is to support individuals with hearing impairment to gain and develop verbal communication to integrate them into society and use their existing potential most efciently. An important point and prerequisite in the auditory-verbal approach is the development of listening skills. The child must have listening skills in order to receive healthy inputs.
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C. C. Cingi and D. T. Eroğlu
4.8 Auditory: Oral Method
This method teaches deaf children to use their residual hearing with lip reading and context clues to understand and use spoken language in a better way. In this method, kids do not use sign language. To get the best out of this method, teachers, families, and the kids need to work hard and equip the child with spoken input as much as possible.
4.9 Family Awareness foraDeaf or Hard ofHearing Child
The studies show that families with great awareness can create a big difference for their kids to communicate with the world and integrate with the society that they are living in. Other people like teachers, peers, relatives, or neighbors can also be help­ful. However, it is the parent’s responsibility to help their kids to develop auditory skills and use residual hearing at maximum. To achieve that, what should be done is not a sprint but a marathon. Some crucial points to bear in mind during that run are as follows:
• They need to organize a suitable environment for child–parent communication.
• They need to set short- and long-term goals.
• They must model their kids with techniques to give input and help to
communicate.
• Listening, speaking, and other interaction tools must be adapted to their daily
routines.
• They must monitor each change in their kids and discuss them with their profes-
sional guides. Recording and discussing the process with professionals will cre-
ate a big difference.
• They must be with the child during therapy and inform the therapist about their
child’s abilities and interests.
• They must evaluate all the communication opportunities and respond
appropriately.
• They have to adopt the most appropriate behavior management. They try hard to
be patient and understanding and know how to manage their anger or sadness.
• They have to support their kid along the path.
• They should speak with their child in sentences and avoid single-word expres-
sions bearing in mind that they need naturally spoken input.
• They also need to bear in mind that their kid might be the only student with hear-
ing problems at the school. In such a case, they might choose a school where the
other peers also have the same impairment. The teachers knowing how to use the
language techniques that those kids need might be preferred [46].
4 Communicating withaChild withHearing Loss
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4.10 Communicating withHearing-Impaired or
Deaf Children
The importance of the idea and studies stating that disabled individuals should be integrated with society is so positive. Deaf and hard-of-hearing individuals use visual language to communicate their emotions, thoughts, wishes, and needs. They are easy to learn, however, the public awareness rate could be higher.
This makes it difcult for the hearing impaired to communicate with the people around them. However, there are some other things one can do to communicate more effectively with them.
As stated above hearing-impaired people can use different communication meth­ods. It is helpful to nd out which way they use before contacting them. Knowing their way of communicating will make it easier for you to interact with them. Using the same codes and signs will be a real help to them [26].
Other times there are some other things to take into consideration:
• You need to be aware that those individuals mostly know lip reading, so while
communicating with them, make sure that your lips are seen clearly and try not
to eat or chew anything, and do not smoke, as those things might hide the move-
ments of your lips. Be careful to speak directly to that person.
• You do not need to shout at someone hard of hearing. This makes communica-
tion harder for those who need to see your natural mouth movements. Instead,
tell them that you can repeat what you have said if anything is unclear.
• Using gestures and body language will also help you interact more clearly. Doing
that, try to be as natural as possible.
• If anything interrupts communication, such as a phone ringing or a doorbell,
someone calling you, etc., before leaving, tell the person about it.
• Try to be understanding, patient, and encouraging.
• Never ask personal questions about the hearing problem.
4.11 Conclusion
Success in helping kids with hearing impairment requires hard work from the teach­ers, parents, and children. The rst step is being prompt to have the diagnosis and start the treatment immediately. During the treatment process, the parents have to accept all the facts as they are and be supportive of the achievement. It must not be a dream to integrate the kids into society and help them be as happy and prosperous as their peers, but a goal [26].
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C. C. Cingi and D. T. Eroğlu
References
1. Marconi K.Communication considerations for children with hearing loss. 2016. https://leader.
pubs.asha.org/do/10.1044/communication- considerations- for- children- with- hearing- loss/full/.
Accessed 23 Nov 2022.
2. Communicating with deaf and hearing-impaired children. https://www.icommu-
nicatetherapy.com/child- speech- language/child- speech- language- hearing- literacy-
communication- disorders- delays/hearing- problems- hearing- impairment- being- deaf/
communicating- hearing- impaired- deaf- children/. Accessed 23 Nov 2022.
3. So your child has a hearing loss: next steps for parents. Alexander Graham Bell Association.
http://agbell.org/NetCommunity/Document.Doc?id=414.
4. Ways to communicate with a child with hearing loss. https://successforkidswithhearingloss.
com/wp- content/uploads/2011/08/Comm- Options- Overview- Ways- to- Communicate- with- a-
Child- with- Hearing- Loss.pdf. Accessed 23 Nov 2022.
5. Decision making. American Society for Deaf Children. http://www.deafchildren.org/
resources/12_ASDC%20- %20Article%20- %20Decision%20Making.pdf.
6. Communication modes. American Society for Deaf Children. http://www.deafchildren.org/
resources/13_ASDC%20- %20Article%20- %20Communication%20Modes.pdf.
Communication intheFamily
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ofaHearing-Impaired Child
DilekTuranEroğlu andCanCemalCingi
5.1 Introduction
When a family member is diagnosed with a serious illness, it affects all family members, not just the patient. The situation can be even more distressing if the diag­nosis of this serious illness is chronic and will affect the patient’s entire life. Diagnoses given to children upset the parents and they have difculty in coping with them. The family, who is informed about the child’s hearing loss, feels helpless about acceptance and what needs to be done next, especially at rst times. This issue, unlike other diseases, includes much more sensitivity in terms of not breaking away from normal life and gaining and using communication skills, as well as treat­ment. For many years, people have been working to help hearing-impaired individu­als be at the highest level in using their communication skills, and they have dealt this issue from all aspects [1].
The aim of this chapter is to explain what kind of action plan and behavior man­agement the family should have in this process for the hearing-impaired children to gain the required communication skills.
5
D. T. Eroğlu (*) Department of Foreign Languages, School of Foreign Languages, Anadolu University, Eskişehir, Turkey e-mail: dteroglu@anadolu.edu.tr
C. C. Cingi Communication Design and Management Department, Faculty of Communication Sciences, Anadolu University, Eskişehir, Turkey e-mail: ccc@anadolu.edu.tr
© The Author(s), under exclusive license to Springer Nature Switzerland AG 2023 A. E. Arısoy et al. (eds.), Hearing Loss in Congenital, Neonatal and Childhood Infections, Comprehensive ENT, https://doi.org/10.1007/978-3-031-38495-0_5
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D. T. Eroğlu and C. C. Cingi
5.2 The Important Points forFamilies withChildren Having
Hearing Loss or Deafness
Family–child interaction is such an important factor in the social and emotional development of the hearing impaired. During infancy and early childhood, individu­als interact with the people around them and have access to auditory inputs that will support the development of language and communication skills. These interactions help the infant develop naturally in terms of language and communication skills without the need for additional support. However, children with hearing loss do not get auditory inputs during these interactions and encounter various problems in lan­guage acquisition, which results in communication problems. In such cases, early diagnosis is vitally important for the success of the treatment and in overcoming communication barriers. Thus, it is suggested that all infants should have a hearing screening, which is an important indicator of deafness or hearing loss in a child. Early intervention, when such a diagnosis is received, is offered to children with special needs aged 0–3years. Since it covers special education and other support services, the family should take action as soon as possible and start implementing the necessary measures. What kind of action plan and behavior management the family should take in this process is explained below.
1. When intervention is initiated early, it is possible to exploit invaluable opportu-
nities in the early years of verbal and nonverbal language acquisition [1].
2. Before everything, people should bear in mind the fact that every child is
unique, so the rst thing to do for the family is discover the child’s other fea­tures other than hearing impairment. Then the unique features of his/her deaf­ness have to be known, too.
3. It would be wise to nd out about all the services for the hearing impaired
where you live [1]. Information about schools, specialists, and events can be obtained from people with similar problems and from city health centers.
4. There may be children who object to wearing devices. The family should under-
stand that the child does not have a chance without a hearing aid, and the device should be worn constantly no matter what the child wants.
5. The methods to optimize existing hearing remnants of children through appro-
priate hearing aids should be chosen. To nurture the child to develop verbal communication skills with adequate input is a must. In order to do that, the use of existing potential in the most efcient way is essential.
6. Throughout this journey the families have to work with a team of professionals,
such as a pediatrician, an otolaryngologist, and a speech-language pathologist. Those professionals need to have experiences to work with infants and children with hearing impairment. Each specialist should be informed about others’ actions and thoughts and they should work coordinately [1].
7. It is important to get information about the process and activities from the
school administration and teachers where your child will attend. In addition, it should be learned how to cooperate with the teacher to work effectively [1].
5 Communication intheFamily ofaHearing-Impaired Child
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8. It should never be forgotten that the child needs love, care, support, and a smi-
ley face as well as friendly language inputs. The parents and all the caregivers around the child should always treat the child with love and affection. Frequent holding, facing, smiling, and responding are such vital remedies. It is a well­known fact that what children need most is to receive love from everyone around them [1].
9. In order to teach the child to understand the sounds they hear, families have to
be trained in terms of improving listening skills. Listening activities are to be included in family education so that the child can gain experiences to improve his/her comprehension.
10. Parents of children with hearing loss are constantly trying to teach their chil-
dren something. Without play-supported activities, the child’s growth is unthinkable. Experts have to put play-assisted learning to work by planning different types of plays for families.
11. Daily routines are important opportunities for language acquisition. Going
shopping together, reading a book, preparing a meal, participating in celebra­tions, and other visits are facilitators that provide the child’s language develop­ment in a natural environment.
12. Speaking with the child in sentences and avoiding expressing in single words
are important. In the early stages of the child’s language development, single­word speech leads to non-uniform melodic speech. Highlight the word you want to teach in the sentence. For example, instead of just saying “banana” say “Would you like to eat a BANANA?”
13. It is important to help the child by saying the words that the child intends to say
but cannot. While doing this, approach in an encouraging way, so that the child can feel secure.
14. Sound, noise, music, crowd, and distance in the communication environments
are so important in interpersonal communication for individuals with hearing impairment. Noise impairs communication and makes it difcult to understand the words that you utter. Thus, in such cases try to be close to the person and make sure that your face is visible to him.
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When communicating with a hearing-impaired individual, much more care should be taken than usual. One has to be more careful and understanding not to be offensive as a hearing-impaired individual may be irritable or overly sensitive. Below are some important points to keep in mind for the families and others while communicating with those people.
5.3 Communication Facts
5.3.1 Emotions
When communicating with a hearing-impaired individual, rst of all, do not neglect to be visible and use the method of showing your presence with eye contact.