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352
B. T. Stewart and N. S. Gibran
of scar remodeling, which may last up to 24months. The prin­ciples of stretching and exercise plans include the following:
1. Observe tissue reaction without dressings or garments
2. Monitor blanching of the wound to avoid prolonged vascu-
lar compromise
3. Slow, sustained stress is more tolerable and effective for
lengthening tissue than quick, short stretches
4. Elongate skin, scar, and muscle with combined joint
movements
5. Use functional exercises that mimic daily and work-related
activities
6. Position limbs and joints to maintain increased range of
motion after exercise
Splinting and casting can be used to prevent or modify scar contracture formation (See Chap. 21) [68]. Indications for splinting include the prevention of deformity, lengthening of tissue, preservation of length, and protection of skin grafts. Splints allow the application of low force over long periods of time, which maintains range of motion and function during periods of immobility, such as sleep. Splints may be static, static progressive, or dynamic; the latter is employed if exer­cise and static splinting fail to gain adequate range of motion.
The indications for splinting change with the phase of out­patient burn care. In the acute phase, splinting focuses on edema control, maintaining position, and relief of pressure points to facilitate uniform healing. In the intermediate phase, protection of grafts and maintaining adequate range of motion become more important. In the long term, emphasis is on the mitigation of scar contracture. It should be explicitly stated that splints and casts are not substitutes for range of motion exercises.
Serial casting also allows application of low force over time to stretch tissue [69]. Casts may be useful for patients with low adherence to a rehabilitation plan, as they are more difficult to remove than splints. However, casting eliminates the ability to perform regular range of motion exercises and
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causes muscle atrophy of the casted extremity. Additionally, casts require reapplication at regular intervals to apply equal and adequate forces over time.
Educate Patients andTheir Support System
There are few injuries and conditions that require as much participation from patients and families to achieve a good outcome than burn injuries. It is vital to educate patients and their support systems and incorporate them into the care process as collaborators. Clinic visits should include ample time for education to maintain their understanding of and participation in the recovery processes. Education can be augmented by factsheets (https://msktc.org/burn/factsheets), videos, and augmented reality tools. The Model Systems Knowledge Translation Center (MSKTC) has factsheets for burn-injured patients and their providers on topics such as wound care, pain, psychological distress, exercise, itchy skin, employment after injury, scar management, sleep problems, sexuality and intimacy, social interaction, sun protection, and body image. Additionally, survivorship communities, like the Phoenix Society for Burn Survivors (https://www.phoenix-
society.org), provide people living with burn injury and their
providers with resources to improve care and understanding and connects survivors to others who have experienced simi­lar injuries.
Define Return Conditions andSchedule
In the acute phase, specific signs and symptoms that mandate early reassessment should be discussed. Such issues include increasing pain or anxiety associated with dressing changes, signs of infection, functional decline, inability to sleep, and safety concerns. Frequency of clinic visits varies based upon the needs of the patient. Generally, patients with an acute injury should be evaluated 1–2 times per week. Patients who
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B. T. Stewart and N. S. Gibran
live close to a clinic could be seen daily for wound care if needed, and those who liver further away could be managed with a combination of in-person and telemedicine visits dur­ing the healing process.
Consider Need forLong-Term Follow-Up toAssess thePatient andTheir Scar
Patients with wounds that do not heal within 14 days have increased scarring risk; the majority of wounds that remain open for longer than 21days develop some degree of hyper­trophic scarring [26]. A hypertrophic scar is a raised, ery­thematous, pruritic, and inelastic mass of tissue that results from a large amount of extracellular matrix of altered compo­sition and organization compared to normal dermis. Hypertrophic scarring is common, with a prevalence that ranges between 32 and 72% depending on factors such as presence of specific genes, TBSA burn, location of injury, and time to healing [7072]. Scar formation can result in contrac­ture, pain, itch, loss of thermal regulation, stigmatization, and psychological distress [26]. Some patients develop hypertrophic scar without risk factors. Therefore, follow-up visits should be planned for patients to return to the clinic or send photographs of their wounds within 1–3 months after wound closure and until the scar has matured, which may be a year or more after injury. During these encounters, provid­ers can assess the scar, discuss its impact on the patient’s func­tion and quality of life, and develop a scar management plan (see Chap. 21).
Outreach toSupport Community-Based BurnCare
There will be circumstances when patients are unable or unwilling to travel the long distances necessary to access interdisciplinary burn centers for in-person care. Additionally,
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some patients, injuries, and problems need initial consultation and close surveillance by an interdisciplinary burn team but not the intensity of an in-person encounter. Therefore, burn centers should establish outreach programs to support community- based providers, particularly in regions and con­texts where travel can be long or burdensome. These pro­grams have taken the form of satellite clinics managed and staffed by a regional burn center or indirectly by identifying, training, and supporting community-based care providers. Ways in which burn centers have optimized outpatient care include the creation of specific care and consultation path­ways, implementation of locoregional quality improvement programs, continuing education opportunities, and dissemi­nation of best-practice guidelines.
Pathways
With a mature trauma system with established referral prac­tices, burn care pathways can streamline consultation and transfer requests, reduce under- and over-triage rates, extend burn care expertise within a geographic region, increase the efficiency of burn center services, and improve patient satis­faction. As an example, the UW Medicine Regional Burn Center developed four pathways (Table16.2) to make refer­ring practitioners comfortable with emergency care of burn wounds and facilitate burn expert assessment of burn wounds. Practitioners at emergency departments and clinics within the region call UW Medicine Transfer Center and provide information regarding the patient, injury, local capacity, and specific request. Nurses at the Transfer Center then deter­mine which of four pathways the patient should follow and enact the respective protocol. In addition to collating infor­mation, the Transfer Center coordinates photos of the injury to inform recommendations by a burn surgeon at the UW Medicine Regional Burn Center. When appropriate, the Transfer Center notifies the Burn Clinic via an electronic platform and the Burn Clinic calls the patient the next busi-
356
Consulng
outpaent criteria
B. T. Stewart and N. S. Gibran
T . Example of regional consultation and transfer pathways adapted from UW Medicine Regional Burn Center
Pathway
Black
Red
Blue
Green
praconer request
Urgent consult with a burn surgeon
Transfer due to inadequate capacity for inpaent or outpaent care
Brief consultaon to facilitate local care without transfer to the Burn Center
Outpaent follow-up at the Burn Center
Indicaons Protocol highlights
Airway concerns, >5% TBSA and full­thickness injuries, electrical and chemical injuries, concomitant burn and other injuries, and/or a social concern (e.g., abuse or neglect)
Paent and/or burn injury that exceeds local capacity
Paent and injury that can be managed locally with the consultaon with and support of an experienced burn care provider Small burn injuries and paents who otherwise meet
Transfer Center connects the referring praconer to the on-call burn surgeon. Depending on the case, the paent is then either transferred for inpaent care at the Burn Center or a Burn Clinic follow-up plan is made.
Transfer Center connects the referring praconer to the on-call burn surgeon. Paent transfer to the Burn Center is arranged.
Burn Clinic coordinaon is provided based on the paent and injury.
Transfer Center and Burn Clinic create a follow-up plan.
ness day with appointment details. This system manages about 150 consultations per month, 75% of which are treated locally with guidance by the Burn Center. This triage tool has significantly reduced under- and over-triage of patients to the Burn Center.
Quality Improvement
Local and burn center quality improvement (QI) programs should systematically collect burn care metrics (e.g., under­and over-triage, adherence to best-practice guidelines, wound infection rate, unplanned hospital admission rates, patient satisfaction) and review them individually and within the context of a wider burn care system. Such QI programs serve to identify opportunities to improve triage performance and the quality of care provided to inpatients and outpatients. Detailed guidance for local and regional burn care quality improvement programming in low- and middle-income coun-
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Establish contextually
appropriate standards
Evaluate the impact of
qualityimprovement
efforts
Assess services and
reasonsfor gaps in
light of agreed
standards
Buildcapacity based on findingsfromgap
analysis
F. . Framework for local and regional burn care quality improvement programs adapted from Interburns (International Network for Training, Education and Research in Burns) [73]
tries has been published by Interburns (International Network for Training, Education and Research in Burns) [73]. The Interburns framework describes the steps to define clini­cal standards, evaluate service delivery and perform a gap analysis, build targeted capacity, and assess the impact of the efforts (Fig.16.1). Ethiopia, Ghana, Malawi, India, Bangladesh, Cote D’Ivoire, Pakistan, Palestine, and Nepal have taken part in all or parts of this process to improve care for burn patients [73, 74].
Training
Burn center outreach should include training programs for community practitioners that strengthen their ability to triage burn-injured patients, provide outpatient care, and recognize the need for consultation and referral. Training programs might take the form of continuing medical education courses, workshops to target specific capacity deficiencies, and/or webinars. The use of social media platforms can extend burn prevention, first aid and care messaging and support outreach initiatives. Over time, the cumulative effect of these activities will increase burn care knowledge and capacity in communi­ties more proximate to patient homes.
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Use ofOutcome Measures forQuality Improvement
Assessing the performance of clinical services using PRO measures is a core function of burn care. People living with small or large burn injuries may sustain temporary or irrepa­rable loss of function due to the injury, burn care system dysfunction, failure of social support, and/or patient charac­teristics. When burn care and rehabilitation efforts fail to return patients to a preinjury functional state, it is imperative that patients retain a good quality of life. Quality of life data can determine the effectiveness of the care being provided and inform long-term expectations of patients and their sup­port systems.
A United States program (Burn Model System, BMS) was established in 1993 by the predecessor of the National Institute of Disability, Independent Living and Rehabilitation Research (NIDILRR). The BMS National Database now includes >7200 participants from six major interdisciplinary burn centers with follow-up ranging from 6 months to 20 years. Reports from the BMS have contributed valuable information about participants’ experiences during recovery from a burn injury, risk factors for poor outcomes, and oppor­tunities to engineer burn care systems to be more responsive to patients’ needs. Additionally, BMS and the NIDILRR Model Systems Knowledge Translation Center have pro­duced resources and educational materials for patients and providers that are essential to outpatient burn care and improving outcomes for burn survivors [75].
The challenge for burn care systems becomes incorporat­ing the systematic use of PRO measures into clinical care and using those data to inform individual patient care needs, opportunities for quality improvement, and the impacts of specific burn care system interventions. These challenges are even greater where care is distributed across multiple envi-
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ronments and when it is delivered across multiple platforms. However, these changes in the delivery of outpatient burn care are all the more reasons to ensure patients receive the services they need and achieve optimal outcomes.
Conclusion
The goal of outpatient burn care is to manage acute injuries and return patients to their preinjury level of function. To maximize this potential, an interdisciplinary team approach with specific, measurable functional goals is needed. This approach can be achieved at a regional burn center or at non­specialty clinics with incorporation of burn expert outreach, consultation, and telemedicine. Regular assessment of patient progress, wound healing, scar formation, and creation of per­sonalized treatment plans is essential. Given the lack of strong evidence-based guidelines for outpatient burn management, care should be performed in consultation with experienced providers from interdisciplinary burn centers [1, 45]. Regardless of the burn care system structure, use of PROs should define therapeutic requirements, referral to advanced specialty care, and evaluate burn care performance.
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